Tarja Kelly
Hi, My name is Tarja Kelly, and I am the Author of the book ‘I Have HED’ Hypohidrotic Ectodermal Dysplasia.
You are here because you have HED, you know of someone with it or you would simply like to know more about it. No matter why you are here, we appreciate you taking the time to learn more about how we can help you understand HED and how to support others with it, this book helps to de-mystify HED for affected individuals, families, friends and carers.
What is HED?
Hypohidrotic Ectodermal Dysplasia
Hypohidrotic ectodermal dysplasia is one of about 150 types of ectodermal dysplasia in humans. Before birth, these disorders result in the abnormal development of structures including the skin, hair, nails, teeth, and sweat glands.
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